my dear friend carolyn, whom i’ve known since high school has a 2 1/2 year old son name bo who was diagnosed with ipex syndrome in december 2011. ipex is a very rare genetic disorder and doctors believe a bone marrow transplant will help. on july 15 carolyn, her husband john and all four of their children will be traveling to cincinnati children’s hospital to meet with the team of doctors who will eventually perform bo’s transplant. when bo does have his transplant he and carolyn will have to remain in cincinnati for a minimum of 14 weeks. as you can imagine the macan’s medical and travel expenses are mounting and will continue to do so for quite some time. i snapped this photo of bo (and his twin sister brooklynn) last week. at a glance, you might not know how sick bo truly is. he and brooklynn were born 10 weeks early and sweet bo has spent almost as much time in the hospital as he has out. around the age of 1 he was diagnosed with type 1 diabetes and has an insulin pump. because bo produces no growth hormone he has a g-tube to receive nutrient rich […]
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