my heart is full. crazy full. we’re talking just pigged out on thanksgiving dinner and need a nap full. in the last week so many people in our community have come together and have truly made a difference. every day i watch the news and i see so much crime and tragedy and sadness that i start to wonder what the world is coming to. i wonder what’s happened to all the good people in this world…but i’ve come to realize there are lots of them living right here in roeland park. and i am so proud to call them my friends. last week our mini sessions for bo macan were a huge success. this week we’ve seen lots of people sporting their macan it happen t-shirts. if you’d like to order your own macan it happen shirt email shawnamacan[at]gmail[dot]com. and today our friends hosted an incredible bake sale to benefit the macan family. i am utterly amazed by the kindness and generosity in our community. kctv 5 journalist justin schmidt stopped by the bake sale today. KCTV 5 and justin did more than just share the macan’s story with kansas city – he made a generous donation (thanks, justin!) and took […]
my dear friend carolyn, whom i’ve known since high school has a 2 1/2 year old son name bo who was diagnosed with ipex syndrome in december 2011. ipex is a very rare genetic disorder and doctors believe a bone marrow transplant will help. on july 15 carolyn, her husband john and all four of their children will be traveling to cincinnati children’s hospital to meet with the team of doctors who will eventually perform bo’s transplant. when bo does have his transplant he and carolyn will have to remain in cincinnati for a minimum of 14 weeks. as you can imagine the macan’s medical and travel expenses are mounting and will continue to do so for quite some time. i snapped this photo of bo (and his twin sister brooklynn) last week. at a glance, you might not know how sick bo truly is. he and brooklynn were born 10 weeks early and sweet bo has spent almost as much time in the hospital as he has out. around the age of 1 he was diagnosed with type 1 diabetes and has an insulin pump. because bo produces no growth hormone he has a g-tube to receive nutrient rich […]
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